1 week later
It has been a week since my last post.
They had finally taken out the breathing tube and off the ventilator last Saturday. She still has congestion due to the RSV and has nebulizer treatments every 4 hours. She is awake and they had taken out her central line today. That means she is not hooked up to any IV’s, drips, anything. Any medication she has is taken by mouth. The only thing she has is the pulse ox and the leeds for her heart rate. She doesn’t even have the oxygen line on her face. She happened to kick her arterial line last Friday and there was a blood. Good thing the nurse saw it quickly, they decided not to put it back in and just leave it out. Poor Daryl he was the one with Caitlynn, I could only imagine how freaked he was.
She is really irritated with the pulse ox on her foot and tries to rub her feet constantly. There are marks on her feet from rubbing too much that they look like they’re about to bleed. Putting it on the hand doesn’t work at all because she is always trying to play with it. PT came in and they said she looked fine and to keep socks or my hand inbetween her feet.
She had a speech consult today and they decided to try to thicken her formula. I had relayed my feeding issues with her even from before coming to the hospital. She’s scheduled to have an xray done tomorrow of her swallowing. Hopefully we can get to the bottom of this. She is no longer taking breast milk but just having formula thickened with rice cereal. i’m not too thrilled about no more breast milk, but I did the best i can for the past 6 months. if this is what she needs to do then so be it. They can’t thicken the breastmilk because the milk seperates and wouldn’t be as nutrient as the formula? I’m not too sure I’m going to have to clarify this.
We are still in the ICU and under isolation. Thursday will be 2 weeks since she tested positive for RSV. They were thinking of putting us on the regular floor, but if she’s under isolation I’m not sure how that would work because the rooms are shared by 2 patients.
I got to spend some time with Christianne and Cayden last weekend. Christianne is rolling over and over and over again. She truly is a joy, easy going and such a wonderful happy baby. Cayden misses his sister and is constantly asking to come see Caitlynn. I brought him to the hospital on Monday. He wasn’t able to see her because of the isolation, but he did get to spend time with us and see where his Mom and Dad have been. He had fun at the Brown Family Life center and he picked out some beanie babies to come hom. A green bear for himself, a Purple bear for Christianne and a praying bear for Caitlynn. What a sweet boy!
Hopefully the next time I write we will be home!